The results of these test can not be made public without the consent of the owners. This is simply a standard legal issue. As much as I would like to have this information, it will remain a private issue as all results of medical testing in humans. There is a tremendously liability for the labs and health care personal due to the overpopulation of lawyers [ I wait for the test for ethics
] and legislation here regarding privacy of medical info and insurance companies.
Also the lab itself will be unaware of the origin of the sample, identified at that level only by a number, so as not to add bias to the test. Only at the notification will the code number be matched with the sender.
This information can be "volunteered", and placed in a database in a manner that lineage analysis can be done, either publicly or as geneologic research by private individuals, if a document or clause granting permission and a disclaimer of liability is signed by the owner of the dog. This would be a nice addition to any contract for this test.
Faceless information such as ratios of dogs found clean to carrying or even perhaps regional breakouts could possibly be published openly.
As with vWD, the breeders and purchasers will have to, by demand, create a climate that this information is expected as a norm.
Keep in mind that there are still a few questions as to what the results will mean. Mode of inheritance, expression, penetrance, other issues of linkage to other genes, etc. Does the presence of the mutant gene categorically mean a short lived dog? Are some safer to use than others as in the affected, carrier, clear potentials in vWd? Does rotely eliminating a dog with the gene, outside of focused discrete "clean" line programs, eventually create another bottleneck? I wonder if the breeders that now ignore the existence of the vWd test add this to their list of things they don't consider important?
Good to have another power tool in the toolbox.